Join us today to make a difference in the lives of those affected by MS & contribute to the global fight against this debilitating disease.
With over 15,000 members & counting, iConquerMS is more than a research network–we're a movement driven by the resilience & determination of the MS community.
ICONQUER MS NETWORK FREE
Together, we're committed to creating a future free of MS. Stay informed about the latest research findings & breakthroughs Share health data & experiences to advance MS researchĪccess resources, webinars, & expert-curated content Our research initiatives support projects in symptom management, personalized medicine, mental health, & wellness interventions.Īfter joining iConquerMS, members become part of a community working to drive changes in MS research. Our platform allows members to share health data, contribute to research studies, & access valuable resources.Īs a partner of PCORnet, we contribute to the global effort to better understand & treat MS.
Our mission is to leverage patient-generated data, innovative tech, and collaboration to accelerate treatment discovery, the improvement of patient care, and hopefully find a cure for this chronic illness.Įstablished in 2014, iConquerMS bridges the gap between the MS community & researchers. Thank you for being a participant in iConquerMS™! We look forward to keeping you up to date with the progress of iConquerMS™ in future issues of this newsletter.IConquerMS is a patient-powered research network (PPRN) dedicated to revolutionizing multiple sclerosis (MS) research and empowering those living with MS. or 10,000 people have power?' At ACP, we believe that each individual - those living with MS, their loved ones, and friends - has huge power to make a difference, and we invite everyone to use that power against MS. The iConquerMS™ welcome video asks: 'Can one person have power? Can 10. Combined, these two initiatives are a powerful force for conquering MS. Our recently launched OPT-UP study is a clinic-based research investigation into the best uses of MS therapies and the causes of progressive disability in MS. iConquerMS™ is a large-scale online research initiative, in which data of all kinds are contributed by people with MS to fuel discovery.
Uses social media and other digital tools to enhance and sustain an online community for participants.Īccelerated Cure Project for MS, or ACP, has created two unique and complementary research initiatives. Leverages 21st century information technology tools to integrate and analyze the 'Big Data' that is collected, to maximize its research potential. Is seeking an unprecedented level of diversity among participants. iConquerMS, National MS Society Collaborate to Amplify Patient Voices by Laura Kolaczkowski NovemI am excited and thankful to share with you a new collaboration between iConquerMS. Is collecting an extensive breadth and depth of information from people with MS. Is connected to a nationwide network of MS clinics, who are contributing time, resources, and expertise. Is part of a national research network, and has financial support of the Patient-Centered Outcomes Research Institute. iConquerMS is our patient-powered research network that enables people with MS to contribute data and samples, intelligence and ideas to influence research on MS topics they care about. Has a governance structure with a majority of members who are people living with MS, and guidance from these individuals comes via a Governing Board as well as Research, Communications, and Membership committees. You can also power MS research with your questions and priorities. You can help conquer MS by confidentially sharing your health information and ideas. IConquerMS™ is building on the learnings from prior research endeavors - we stand on the shoulders of those who have come before us - to achieve the following unique attributes. iConquerMS brings together people with MS, their care partners, researchers and others to understand MS and search for solutions. iConquerMS™ is woven into the fabric of PCORI's new national research network as a Patient-Powered Research Network. This initiative has the financial support of the Patient-Centered Outcomes Research Institute (PCORI), an innovative enterprise mandated by the U.S. iConquerMS™ is building a bridge between those with the disease and the research community that we hope will lead to new knowledge and improved outcomes for all those living with MS. The bold mission of iConquerMS™ is to drive a new generation of patient-powered research into the causes and symptoms of MS, to better understand the effectiveness of current MS treatments, and to answer many questions that are important to people with MS. On November 23, 2014, the portal was officially launched, open to all who live with multiple sclerosis and their loved ones and friends.
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